Issue 20: Legacy of Literacy: Honouring a Luminary | Pat Jones

I used to go into Mike’s school, and the administrators would quickly go into their offices. I was that parent. I had to be. My son was 8 years old, and he couldn’t read. He couldn’t spell. There was no one acknowledging his struggle. You try your best to be kind, but you don’t have to be liked. There’s too much at stake.
~
Pat Jones OBE (aged 80), speaking to a group of parents and educators in Northern Ireland.

This was Pat’s last public speaking event after a lifetime of advocating for dyslexia. A journey that began in the 1970s on the floor of her 8-year-old son Mike’s bedroom, hugging him as he screamed in frustration from not knowing how to read. Little could she have imagined that the journey would eventually lead her to teach Mike herself, then to the classroom, to the community and decades later to receive a very special honor.

Unveiling the Legacy of Pat Jones in Dyslexia Advocacy

I came to know Pat through my own advocacy work in Northern Ireland. As I sat at the event listening to her share her and Mike’s story, I couldn’t help but think of my own childhood dyslexia journey that had begun just a decade after Mike’s, his in Bristol, England, and mine across the Atlantic in America. I had been lucky enough to get diagnosed and receive the help I needed at school.

By 1977, Mike was 9 and had been diagnosed with severe dyslexia the year before. He had also completed a year of being homeschooled by Pat. He had begun that year unable to spell his own name or read a single sentence. His self-esteem had been at an all-time low. Pat had been determined to figure out if and how her otherwise bright and curious child could learn to read.

Before deciding to homeschool him, Pat researched dyslexia and literacy extensively and came across an approach that is now known as Structured Literacy. She learned that it was essential that Mike be taught in a way that broke down basic foundational literacy skills and then taught them explicitly, sequentially and with enough repetition for him to master each skill (including phonology, letter-symbol relationship, and syllables). Getting a traumatised 8-year-old boy to practice literacy skills with repetition at home must have been daunting, but as Pat explained to the audience that day, she spent a lot of time finding ways to make it fun. One way was by creating silly games. Some so silly that Mike would forget he was practicing literacy skills!

Her efforts paid off. After a year of being taught using a structured approach (including the addition of syntax and morphology instruction) and using his mom’s games for practice, Mike learned to read and write!

It was then that Pat decided it was time for Mike to return to school. When Pat was confident that she had found the right school, she offered to take a position teaching at the same school that Mike was attending. Her job? A literacy interventionalist. She swapped the floor of her house for desks at the school, but her method didn’t change. She used a structured approach paired with fun games to close the gaps in their skills.

By the time Mike and his brother were ready for university, Pat was ready for a change. Parents in her community were constantly asking her to teach their children, and many of them could not afford private specialist tutoring. Pat made the decision to start tutoring from home, sometimes for free for families who could not afford to pay. The demand was so great that she eventually dedicated an entire floor of her house to the centre and hired another tutor to help. This soon became the Bristol Dyslexia Centre, a tutoring centre that Pat still oversees to this day, along with the Dyslexia Trust charity that she helped create to help parents pay for specialist tutoring.

After the centre had been running for a while, Pat decided to open the Belgrave School to support those students who benefitted from being taught using a specialised approach throughout the school day.

Pat ran the school until 2016 before selling it on, but it is still a specialist school to this day. Pat also gave talks and corresponded with parents, schools, local members of government, and the education department. She worked tirelessly, trying to get better support for students with dyslexia in her community. She also travelled around the UK and to other English-speaking countries to help spread awareness about dyslexia.

After graduating from law school in 1990, Mike spent the summer answering phones at the Bristol Dyslexia Centre. He couldn’t believe how many parents were still struggling to find support, much the same way Pat had struggled when he was a child. It was then that he decided to become a specialist tutor, re-trained as a teacher, and started working full-time at the centre with Pat.

Almost a decade later, he and Pat brainstormed ways to reach more students. Using the same Structured Literacy approach and many of the same games that Pat had created with Mike when he was young, Mike began developing a computer-based program. Today, that program is part of Mike’s company, Nessy Learning, and has been used with 100s of thousands of children around the world.

There is one story that Pat, with her humble nature, did not share with us that day in Northern Ireland, but it’s one of my personal favorite parts of her and Mike’s journey. In 2015, on a rare sunny day in London, Mike escorted his mother to Buckingham Palace to meet Queen Elizabeth. Pat was there to receive her OBE (Order of the British Empire) for her dyslexia advocacy work. I cannot think of a more fitting way to celebrate her work and her passion for ensuring all dyslexic children reach their potential.

Thank you, Pat, for giving so many parents the courage to trust their instincts and fight for equity in education for their children. We will keep the flame you lit going so that we may shine the light on Dyslexia for generations to come.
~
Jodi Snowden
Nessy Outreach Coordinator
Advocate at DANI
Bangor, Northern Ireland, United Kingdom

My name is Rosie. I am a parent of twin girls, Neave & Eefá, who are both dyslexic. The girls and I met Pat during her visit to Northern Ireland in 2021. When my daughters met Pat, they were two shy 12-year-olds, which I believe is due to their dyslexia as it does affect their confidence. As a parent, I felt a real connection with Pat; watching Mical brought a tear to my eye as it was just so relatable. Eefá is severely dyslexic; she struggled very much at Primary school, and at one point, I thought she was never going to be able to read. There were many tears, both mine and the girls. Speaking to Pat reassured me that I was not alone and everything would be ok. Pat also had left a really positive impact on Eefá especially, making her feel anything was possible. Eefá wanted to show how much Pat meant to her by making her something, so she made her pin board which she stayed up late making so she could give it to her the following day.

Pat is a kind, warm, loving person. She deserves a medal for everything she has done for kids with dyslexia recognising their strengths and helping them learn in a different way. We love you, Pat. You made a lasting impression on our hearts here in Northern Ireland. Wishing you a happy retirement.
~
Lots of love
Rosie, Neave & Eefá xo

As a person with dyslexia, what did seeing Pat's journey in Mical mean to you?

The most overwhelming feeling was seeing my story depicted on screen! Representation is hugely important. Seeing our stories reflected back is incredibly powerful and empowering. It is also quite often the beginning step in raising global awareness and debunking the myths surrounding dyslexia.

How was your experience similar to or different from Pat and Mike's?

Watching Mical made me realise how truly lucky I have been on my dyslexic journey. Whilst it did take a long time for my dyslexia to be recognised, from the time I was diagnosed, I was fully supported by my teachers and school. I was so incredibly fortunate not to have been subjected to taunts and ridicule that, sadly, so many young people have been. Thankfully, the only similarity my story has with Pat's and Mike's is that I, too, was blessed with having an amazing family that has always supported and advocated for me.

What qualities or attributes make Pat stand out as an outstanding advocate for individuals with dyslexia?

Her love for Mike and her persistence and determination. Pat's story reminded me that one person really can make a difference!

Thank you, Pat, for everything you have done for our dyslexia community. You truly have been a pioneer that has helped change and shape the way we, as a society, view dyslexia. Not only have you helped generations of young people like me to realise that with the right interventions, we really can soar, but you and the Nessy team have also shone a global spotlight on dyslexia, helping to change perceptions worldwide for the better. As you transition into retirement, we send our love and gratitude from around the world and hope that you enjoy your well-deserved rest. Your work is done!
~
Georgia Ryan
Dyslexic Warrior
Youth Ambassador - Dyslexia Mid North Coast
Ambassador- Raising Literacy Australia
Mid North Coast, Australia

As a parent of dyslexic children, what did seeing Pat's journey in Mical mean to you?

As parents of young people with dyslexia, we often face challenges in obtaining recognition, high-quality intervention, and support from our schools. Watching Pat's life journey, her acknowledgment by the British people through her OBE award, and the profoundly impactful film "Mical" meant the world to our family. Witnessing Pat's story has been incredibly inspiring. She not only overcame the challenges of her child's dyslexia but also emerged as a global advocate for others facing similar struggles. Pat's journey serves as a beacon of hope, demonstrating that there is immense potential for young people everywhere and that dyslexia should not hinder anyone's dreams or aspirations.

How was your experience similar to or different from Pat and Mike's?

My experience has similarities with Pat's in terms of navigating the educational system and advocating for the needs of my young people and the parent members of Dyslexia Victoria Support and the needs of my family. Like Pat, I've had to fight for appropriate accommodations and support for my child, and I've seen firsthand the importance of persistence and determination in ensuring their success. However, our experiences may differ in the specific challenges we've encountered along the way.

What qualities or attributes make Pat stand out as an outstanding advocate for individuals with dyslexia?

What stands out to me about Pat is her unwavering dedication and passion for advocating for individuals with literacy difficulties, including dyslexia. Not only has she spoken out about the issues facing dyslexic individuals, but she also takes action to create positive change, whether it's through raising awareness, lobbying for policy changes, or providing support to others in the dyslexia community. Her empathy, resilience, and commitment to making a difference are qualities that have made her an outstanding advocate for literacy and numeracy difficulties.

Pat as you transition into retirement, I want to express my deepest gratitude for your tireless advocacy and unwavering dedication to the dyslexia community. Thank you, Pat, for being a source of hope and inspiration for so many individuals and families, including my own. Your legacy will continue to influence generations to come, and we are eternally thankful for your determination to bring evidence-based support, love, and guidance to families across the world.
~
Heidi Gregory
Parent Advocate, Founder Dyslexia Victoria Support, Vice President SPELD Victoria.
Melbourne, Australia

As a parent of a child with dyslexia, what did seeing Pat's journey in Mical mean to you?

The story was a powerful reminder that we are not alone. It is also a powerful reminder that we must do something to change our educational systems to ensure teachers know how to support students with dyslexia because this kind of suffering is completely preventable.

How was your experience similar to or different from Pat and Mike's?

Specifically, as a mom with a son with dyslexia, every part of their story resonated with me, including the innate instinct to figure out how to help my son and hopefully help others. In my case, our family's commitment has been the REED Charitable Foundation. I will never forget watching the film and hearing Mical scream. It took my breath away because I know that visceral scream. It should be reserved for mortal danger, but struggling to read can elicit the same scream.

What qualities or attributes make Pat stand out as an outstanding advocate for individuals with dyslexia?

There is no one more powerful than a mother fighting for her child's survival. Someone once said that purpose is found at the intersection of your talent and/or passion and what breaks your heart. Pat is the epitome of that statement.

Thank you, Pat, for not only fighting for your own child, but for caring enough to pave a better path for other mothers and their incredible dyslexic kiddos. Because of your important work, passion and mother's love - our world is a better place - and I am filled with gratitude.
~
Jen Knopf
President, Founding Director - REED Charitable Foundation
Orlanda, Florida, USA

As a parent of a child with dyslexia and an educator, what did seeing Pat's journey in Mical mean to you?

As a mother and educator, Michale's journey in the movie Mical deeply resonated with me, recalling my own child's dyslexia challenges. The film vividly highlights the hurdles dyslexic children face in the education system. Like Pat, I took steps to understand dyslexia and support my son Benjamin effectively. The quote, "Dyslexia doesn't come with a manual. It comes with a mother (or father) who doesn't give up," captures the shared determination of parents like Pat Jones and me. Mical's story is an inspiration, emphasizing early identification, effective instruction, and a steadfast belief in our children's ability to overcome dyslexia challenges. Watching Mical's struggles and Pat's unwavering efforts was moving, serving as a poignant reminder of the resilience and dedication needed in supporting dyslexic children.

How was your experience similar to or different from Pat and Mike's?

My experience as a parent of a dyslexic child aligns with Pat and Mike's journey in facing challenges within the education system. Like Pat, I've had to advocate for my child and actively seek out effective teaching methods. While Pat created her own system, I have found many resources, evidence-based programs and training that I could do. Pat's success in changing Mike's educational trajectory inspires me and so many others, reinforcing the belief that with persistence and a commitment to advocating effective teaching methods, dyslexic children can overcome obstacles and reach their true potential. Pat's story reminds us, as parents, of our crucial role in shaping our children's educational experiences and advocating for effective instruction and intervention.

What qualities or attributes make Pat stand out as an outstanding advocate for individuals with dyslexia?

Pat Jones stands out as an extraordinary advocate for individuals with dyslexia due to her unwavering determination, belief in the potential of dyslexic children, and focus on finding the right teaching methods. Her journey, as portrayed in "Mical," serves as a guiding light for those navigating the complexities of dyslexia advocacy and this journey that so many parents and children face. Pat's teaching materials that she created inspired her son Mike to start Nessy in 1999. Her advocacy has positively transformed the educational landscape for dyslexic individuals, inspiring a shift towards a more inclusive and supportive learning environment and dyslexia awareness.

Dear Pat, as you step into a well-deserved retirement, I want to express my deepest gratitude for the profound impact you've had on the lives of dyslexic students, including my own. Nessy was one of the first programs I started using with Benjamin. I was also thrilled that I won the Dyslexia Aware Teacher of the Year in 2023. This was such an incredible honour, and your signed picture holds a cherished place in my living room. Your unwavering determination and commitment to making a difference have inspired countless parents, educators, and individuals touched by dyslexia. Beyond your own family, your establishment of reading centers and a dyslexia unit exemplifies your dedication to transforming lives. Your legacy of awareness, compassion, and belief in the potential of every dyslexic child is truly remarkable. The OBE – Officer of the Order of the British Empire you received in 2015 for your services to education is a testament to the positive change you've brought to the world of dyslexia education. As you transition into retirement, please accept my heartfelt gratitude for the countless lives you've touched and the lasting impact you've made.
~
Melanie Brethour
Founder of Decoding Dyslexia Quebec and SOAR With Dyslexia. Presenter, CERI Structure Literary Teacher. OGA. Dyslexia & SOR Advocate
Montreal, Quebec, Canada

As a teacher, what did seeing Pat and Mike's journey in Mical mean to you?

Seeing Pat and Mike's struggles in the film was a harsh reminder of the emotional toll illiteracy has on a child, as well as on their entire family. Students with dyslexia often hide their struggles at school or learn to mask their struggles so teachers do not see their exhaustion from tasks that can appear simple to peers. I often hear similar stories of exhaustion from parents who describe their child as having "explosive outbursts" or "daily meltdowns" after school because of the self-control it takes to get through a school day. These behaviours often, although not always, happen behind closed doors where we, as teachers, do not see the emotional tool of inappropriate, ineffective instruction on our students. My hope is to empower students with reading difficulties from a young age by educating them about dyslexia and teaching them to speak up to their teachers to say, "This is hard for me, and I need a Structured Literacy approach to reading", and advocate for their own learning needs. The Nessy Book "What I Need" has helped my students become more

knowledgeable, stronger, less timid and more confident advocates for their own learning needs at school. I am SO grateful to Nessy for giving me this book to share with my students with dyslexia.

What qualities or attributes make Pat stand out as an outstanding advocate for individuals with dyslexia?

Pat is an outstanding advocate because she is relatable, speaks from personal experience, and empowers other parents/caregivers of children with dyslexia to be their child's best advocate. It is very hard for parents/caregivers to take advice from educational leaders who cannot relate or identify with the struggles of parenting a child with dyslexia, including academic, emotional, and social struggles. Pat is transparent about the challenges and barriers that she faced, which gives other parents hope for their journey in supporting their child. Pat is an inspiration to many because she challenged the system, challenged the way of doing things, and never took no for an answer. She believed in her son and showed the world that the problem was with the school system, not her son.

Pat, thank you for your tireless advocacy for students with dyslexia near and far. Your passion and drive to help families and children with dyslexia can be felt across the pond all the way to Canada! I promise to honour your legacy by continuing to raise dyslexia awareness, advocate for change in the way reading is taught in public education and be the voice of families and students with dyslexia whose voices have not been heard, just like you were the voice for your son, Mike, so many years ago. Enjoy your retirement, knowing that your passion and hard work lives on!
~
Kim Lockhart
French Immersion Special Education Teacher,
IDA of Ontario, Board of Directors, and
Course Instructor at Vancouver Island University, Faculty of Education
Kingston, Ontario, Canada

As a teacher, what did seeing Pat and Mike's journey in Mical mean to you?

Witnessing Pat and Mike's journey in Mical was enlightening as a teacher, providing valuable insights into the challenges dyslexic students face and fostering empathy and a deeper understanding in my teaching approach.

What qualities or attributes make Pat stand out as an outstanding advocate for individuals with dyslexia?

Pat's outstanding advocacy for individuals with dyslexia is marked by her unwavering support, empathy, and commitment to raising awareness about dyslexia, showcasing resilience and determination in overcoming obstacles.

In Pat's transition to retirement, I express heartfelt gratitude for her tireless dedication to empowering dyslexic individuals. Her legacy inspires us to continue championing inclusivity in education.
~
Lola Aneke
MAT SpEd, Ph.D Student
Neurodiversity Consultant Founder/CEO C.A.D.E.T Academy
NGO Dewdrops Community Centre
Abuja, Nigeria

Letters to Pat Jones

Extracts from Dystinct Magazine